HSC R&D Division have just launched a new project in association with the James Lind Alliance ‘Involvement Matters’, which aims to strengthen, improve and understand the priorities for Personal and Public Involvement (PPI) in Health and Social Care research across Northern Ireland.
The first step is to complete a short survey that should take approximately 10-15 minutes to complete. You can access it here.
This survey aims to improve how members of the public are involved in health and social care research. We would like people across Northern Ireland to share their views on how the public is involved in health and social care research. This includes patients, carers, service users, charities, voluntary and community groups, and anyone with an interest — even if you’ve never been involved in research before. You don’t need to have any special experience — just your own thoughts and ideas.
By “research”, we mean work that explores questions to improve health, care, and services — across hospitals, communities, and wider populations.
By Personal and Public Involvement (PPI) in research, we mean research carried out with or by members of the public — including patients, service users, carers, and community and voluntary sector groups — rather than research done to, about or for them. This could mean helping to design a research project, advising on how research is carried out, or helping to share or explain the findings.
An animation explaining PPI can be viewed here: https://vimeo.com/1105399072/7ffc637f81
We are keen to hear from
- People (16+) who have been actively involved in the design or delivery of health and social care research (in roles other that study participation, such as contributing insights or guiding project development).
- People (16+) who are interested in being involved in research, even if they have not done so before
- PPI Leads and practitioners (people who advise/lead PPI within their organisations)
- Health and social care professionals who lead on or help to deliver research projects
- Funders of health and social care research, and academic researchers
- Community or voluntary organisations
This is your chance to share what’s working well, what’s getting in the way, and what could be improved. Your experiences and ideas will help us to identify a list of priorities for action to help improve Personal and Public Involvement (PPI) practices in health and social research within Northern Ireland in the future.
All responses are anonymous. Your details (e.g., name, email address) will not automatically be collected, unless you provide them. If you choose to provide your contact details (e.g. to stay involved or hear updates), your information will be kept safe and used only for this project.
This project, conducted in partnership with the James Lind Alliance, is funded by the Northern Ireland Clinical Research Recovery, Resilience and Growth.
If you have any questions or would like this consultation in an alternative format, please contact Dr Alan McMichael by email (Alan.McMichael@hscni.net) or phone (07591448603).
