A list of current opportunities to get involved in Health and Social Care are listed below.
Please ensure all text is concisely written, with the closing date (if applicable) and commitment required included. For further guidance, see designing a role description guide.
- ACCORD Public Community 6th July 2020 Who are we looking for? We would like our community to reflect the diversity of people living in the UK. In particular we hope to achieve representation from: • Regions across England, Wales, Scotland and Northern Ireland; • Those who often face additional barriers when it comes to taking part in research, such as Black, Asian, Minority Ethnic (BAME) communities, those with social and/or financial barriers, and those with disabilities; • Patients, carers, and the general population. You need to be willing to respond to requests for support with short turn arounds (as little as 24 hours) and you will need to be able to access and respond to documents sent over email. Some activities will require you to use video conferencing in order to contribute. We do not expect you to be able to contribute to every opportunity. All documentation should be treated confidentially. How will I be supported? The Patient and Public Involvement team at University Hospital Southampton NHS Foundation Trust will, on behalf of the ACCORD team: • Be your point-of-contact; • Provide you with 1:1 support as needed, such as how to set yourself up for virtual meetings; • Organise payment for your time and expenses.
- Working for openness in Health and Social Care 29th May 2020 “Task and Finish” Groups are being set up to shape and quality assure Guidance for people who use Health and Social Care Services, on how openness must apply across Health and Social Care. The aim is to make sure that patients, service users and their families and carers experience openness and candour in all their dealings with Health and Social Care; in day to day appointments (Level 1 Group) and when something untoward has happened but harm hasn’t occurred (Level 2 Group). The Department of Health is looking for up to five Lay people for each Group to: • Help shape and quality assure the draft openness Guidance for individuals using health and social care services, setting out their rights and responsibilities; • Help to shape future public involvement initiatives to test the Guidance. Could you #Make Change Together by helping to shape this Guidance?
- Dedicated Northern Ireland Covid-19 app launched 6th April 2020 People can ask specific questions through the app with an Advice Search ‘chatbot’ that automatically reviews all the guidance to find a response to match individual queries. By providing early and easily accessible advice to the public, and information on whether someone may need to speak to a healthcare professional the app should also help with easing pressure on GP surgeries, pharmacies and other community services. Once downloaded, people who use the app will also receive push notifications, which will include the latest public health advice.
- Provide strategic direction as a lay member for Health Data Research UK 6th April 2020 Health Data Research UK is the national institute for health data science. Our mission is to unite the UK’s health data to enable discoveries that improve people’s lives. By working in partnership with the NHS, industry, academia and patients, and providing safe and secure access to rich health data, we aim to better understand diseases and discover new ways to prevent, treat and cure them. We've made some changes to our Governance structure and have two new Boards that will report directly into our Executive Committee - the 'Improving and Uniting the Data Delivery Group (IDG)' and the 'Using the Data Delivery Group (UDG)'. We’re seeing more and more how health data continues to have such an important role to play when it comes to healthcare and so we're looking for lay members to join these Boards and have a key role in providing strategic advice and ensuring the patient and public voice has a vital role in decision making.
- Survey on Self Isolation due to Covid-19 24th March 2020 This survey is open to the general public who are isolating due to COVID-19. It is being led by Professor Mark Tully in Ulster University and co-investigators in Anglia Ruskin University.
- Be part of research 11th March 2020 HSC R&D Division, Public Health Agency, which administrates the DoH fund for Health and Social Care Research in Northern Ireland, has collaborated with the Patient Client Council to include a 'Be Part of Research' option in its membership scheme registration form. The aim of this initiative is to establish a register of people who would be willing to be contacted to be involved in research in Northern Ireland either as a research partner or a participant.
- Represent the home nations as a Public Advisory Board member for Health Data Research UK 26th February 2020 Health Data Research UK (HDR UK) is the national institute for health data science. By working in partnership and providing safe and secure access to rich health data, they aim to better understand diseases and discover new ways to prevent, treat and cure them. HDR UK want to ensure their work is grounded in the needs, values and interests of patients, carers and the public so have created a Public Advisory Board. The Board are vital in providing advice on the interests and values of patients and the public in health data use, approaches to earn public trust and confidence around health data, strategic areas of work and much more. HDR UK are now looking for three new members to join the Board and help represent patients and the public in Northern Ireland, Scotland and Wales.
- Involving the Public in the Design and Conduct of Research: Building Research Partnerships 4th February 2020 Who is it for? Patients, carers and members of the public who are interested in getting involved in research and researchers interested in involving patients, carers and the public in their research. What will I get out of it? • As a patient, carer or member of the public, you will gain an understanding of what it means to be involved in research at each stage of the research process. • As a researcher, you will gain an understanding of how patients, carers and the public can get involved in research, practical tips, the opportunity to share your research expertise and build research partnerships.
- The Review of Urgent and Emergency Care 4th February 2020 We want you to help shape our thinking on Urgent and Emergency Care ( A&E ). This workshop is designed for people identified as frequent users of Urgent and Emergency Care. Why get involved? More patients facing longer waits. A workforce under extreme pressure. Increasing demand on services. Growing complexity of conditions particularly among older people.
- Event: Data-driven Society: People, Places and Policy 9th January 2020 This event is for policymakers, data custodians, and researchers from central government departments, as well as those from local government, the voluntary, community and enterprise sector, academia and other interest groups. Within Northern Ireland we have a very data-rich landscape with a number sources comprising administrative, longitudinal and spatial information which can enable a rich and detailed analysis of our social geography over time. This event aims to: • Promote the value of data; • Increase awareness of data sources; • Facilitate links between those with research questions, data providers, and analysts; • Analyse data to form meaningful intelligence; • Apply intelligence to inform policy or shape service delivery; • Discuss the future of data within Northern Ireland.