Cardiomyopathy Change Makers

Get involved


Have you or a loved one been affected by Cardiomyopathy? Are you looking for an opportunity to develop new skills and use your experiences to help others?

We need your insight and experiences to make sure that together, we develop realistic UK wide guidelines of best practice for how cardiomyopathy healthcare is delivered. By getting involved, you will ensure that our work represents and reflects the needs of people with cardiomyopathy and other conditions that affect the heart muscle. Help us shape change and improve the patient journey.

Project overview

As a Cardiomyopathy Change Maker you will bring new perspectives to our project. You will work with us over approximately 3 years, attending ad-hoc meetings roughly once a month, along with additional email consultations. In return, you will receive online induction training and be given a key contact for ongoing support and information in the role. This is a new volunteering role, which is continuously evolving, share your passion for improving the lives of people with cardiomyopathy and apply now.

Commitment required

Respond to information, Attend event e.g. interview, information event, focus group, Group membership and Formal consultation


Email @, to chat through any questions you may have about the role and whether it is right for you or the wider project. You can download the role profile and application form below. We hope you find this process simple, but if you need any help filling in the form or would prefer a paper copy, please email Natalia at:



Register your interest

Click on to access the application form. Once completed you can email your form to: or alternatively you can post your form to: Cardiomyopathy UK, Unit 10 Chiltern Court, Asheridge Road, Chesham, Bucks, HP5 2PX. Forms must be completed and returned by Monday 7th September 2020.