There is no dedicated endometriosis centre in Northern Ireland or even a fast track referral pathway. Since 2013, the Patient and Client Council has been supporting women with severe (Stage IV) endometriosis to engage with decision makers with a view to improving diagnosis, safety and quality of life for patients.
At what level did the PPI take place?
Co-design;
Co-production;
Informing.
PPI helped the project to:
Improve safety;
Inform commissioning;
Increase ownership...
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Health care Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Following representations to the Patient and Client Council (PCC) by patients and carers, the PCC agreed to facilitate a small working group of patients, carers and professionals to further understand the experience of people who are living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Northern Ireland. The aim of the project was to provide a mechanism for ME patients to be involved in decisions about future health care support for them.
The outcome has been a greater aw...
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Hack the pain
The Department of Finance’s Innovation Lab Team, the Public Health Agency (PHA), Patient & Client Council (PCC) and Health and Social Care Board (HSCB) are working with service users and providers to find innovative ways of designing an online tool to support people living with chronic pain.
At what level did the PPI take place?
One to one;
Service development/delivery;
Commissioning/policy.
PPI helped the project to
Improve efficiency of a service;
Improve quality...
More