SLT and Parents: Information on bilingual language development

Parents of bilingual children are often given misleading advice regarding their child’s bilingual language development and how to manage concerns that may arise with regards to this. We asked parents attending our service what misperceptions they had encountered and if they felt these had become barriers to accessing speech-language therapy. In addition, we asked what messages they would like to convey to parents and professionals in order to prevent other families experiencing similar problem...

Carer’s support and needs assessment (CSNA).

Through previous engagements with carers of people with a learning disability and or mental health illness, the Patient and Client Council (PCC) was made aware that carers had a need for further support following poor outcomes from assessments. Carers are entitled to receive a Carer's Support and Needs Assessment (CSNA). For this reason, the PCC decided to do a piece of work on people’s views and experience of the assessment. The report was shared with the Health and Social Care family in Februa...

Fibromyalgia: a hidden condition

This project aims to explain the impact that fibromyalgia has on people’s health, family life, work and hopes. In particular, their frustration with the time taken to get a diagnosis, the lack of understanding of the condition on the part of many healthcare professionals and society, and the lack of effective medication and support for self-management. The key aim of the involvement is to identify how services could be improved within existing constraints and how people can be true partners i...

Health care Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Following representations to the Patient and Client Council (PCC) by patients and carers, the PCC agreed to facilitate a small working group of patients, carers and professionals to further understand the experience of people who are living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Northern Ireland. The aim of the project was to provide a mechanism for ME patients to be involved in decisions about future health care support for them. The outcome has been a greater aw...

Future planning for older people caring for adult dependents with a learning disability

In 2012 the Patient and Client Council (PCC) was approached by a small number of elderly carers who were caring for adults with a learning disability. They were concerned for the future of their loved ones when they could no longer care for them. As a result of these conversations, the PCC worked to understand the needs of elderly carers with a view to championing change together. This project has involved extensive engagement between service users, carers and those with responsibility for pl...

Involving children in co-designing resources.

The project set out to develop practice resources for the Northern Ireland Guardians ad Litem Agency (NIGALA) to more efficiently engage with children and young people involved in Court proceedings in order to ascertain their wishes and feelings in relation to their situation, ensure their wishes and feelings are heard in court, provide information and feedback to children and young people about their court proceedings, and promote their active participation in the court process. At what level ...

The purpose of the Hospital Passport is to provide important information about a person with a learning disability to help all staff in hospital settings make reasonable adjustments to support safe and effective care. It will also improve their experience of care and treatment. The passport was developed in line with Guidelines and Audit Implementation Network (GAIN) recommendations regarding caring for people with a learning disability in hospital settings and involved consultations with a ...

Reshaping Domiciliary Care Services for Older People

Older people tell us they wish to remain independent in their own homes for as long as possible and Domiciliary Care is one of the services provided by the Southern Health and Social Care Trust (SHSCT) to enable them to do this, when they have care/support needs. Domiciliary care within SHSCT has been challenged by growing demands for the service. In response to these increased demands, the Trust initiated a project to design and test an outcomes-based model that would: • support better working...

Hack the pain

The Department of Finance’s Innovation Lab Team, the Public Health Agency (PHA), Patient & Client Council (PCC) and Health and Social Care Board (HSCB) are working with service users and providers to find innovative ways of designing an online tool to support people living with chronic pain. At what level did the PPI take place? One to one; Service development/delivery; Commissioning/policy. PPI helped the project to Improve efficiency of a service; Improve quality...

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