Development of the Community Development Framework

As part of the Health and Wellbeing 2026 - Delivering Together, various work streams were established. A Community Development work stream was set up in January 2017 by Public Health Agency (PHA) to examine how best community development can contribute to the Transformation of Health and Social Care. The work stream is tasked to set clear direction and expand community development approaches to reducing health inequalities in Northern Ireland. To support this the team held 12 consultations, acro...
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The NI Abdominal Aortic Aneurysm (AAA) Screening Programme Service User Event

The NI Abdominal Aortic Aneurysm (AAA) Screening Programme holds an annual service user event to help inform on-going service developments in  this area.  The event invites men who have been screen-detected with AAA, with their families and friends to attend.  The sixth workshop took place in April 2018 in Belfast and was attended by over 50 service users. Over 20 members of the programme team where also in attendance, including staff from the Public Health Agency (PHA) who commission the servic...
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People not Prisoners

PPI helped the project to • Improve efficiency of the service • Improve quality • Improve safety • Inform commissioning • Increase ownership Background People in prison have not previously been consulted in relation to service design or their care needs. We were keen to improve relationships with the men and women in prison - moving to an adult- adult interaction that ensure everyone takes responsibility for improving health outcomes. The People Not Prisoners’ project sought to give of...
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Being me again – life after brain injury

This project looked at designing a new innovation to the Community Brain Injury Team where individuals who were further on the recovery journey would co-produce and co-deliver a course on this topic – “Being me again – life after Brain Injury ”. Service users were involved in the development, implementation and the evaluation of this project. Focus groups were held to explore common issues and themes following brain injury. A course programme was designed incorporating these and then deliver...
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Neurology unit and carer forum

In 2012, the Belfast Health and Social Care Trust Neurology Unit moved from Forster Green Hospital to a new building in Musgrave Park Hospital. It was necessary to bring together staff with patients and carers to determine the functions and operational arrangements of the unit. Initially, a survey was carried out to identify priorities for the unit and patients, along with their carers and family members, were fully involved in providing feedback. At what level did the PPI take place? Service ...
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Help stop choking

Help Stop Choking is an accessible DVD based on a service user's experience to help increase awareness of choking, promote safe eating strategies and reduce avoidable mortality and adverse harm effects from choking for people with a learning disability. Choking has been identified as one of the leading causes of preventable death in people with a learning disability. John, a service user, hopes that by sharing his story he can improve user experience and help other people reduce their risk of ch...
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Western Trust radiotherapy project

During the development of a new radiotherapy treatment facility at Altnagelvin Hospital, the Western Health and Social Care Trust (WHSCT) engaged with service users to ensure their views shaped the design of the service and the ward itself. This input from service users influenced the design of the radiotherapy ward and the ambulance service for patients at the facility. At what level did the PPI take place? Service development/delivery. PPI helped the project to Improve qual...
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Come walk in my shoes

Approximately 30 young people were involved in the planning and delivery of the events and over 100 people from the health and education professions who work with young people attended. Attendees heard from the young people about the challenges they face on a daily basis. The aim of the events was that those who attended would be able to adapt the services they deliver/commission to remove any challenges for young Lesbian, Gay, Bisexual and Transgender (LGBT) people. Interactive events were held...
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Carer’s support and needs assessment (CSNA).

Through previous engagements with carers of people with a learning disability and or mental health illness, the Patient and Client Council (PCC) was made aware that carers had a need for further support following poor outcomes from assessments. Carers are entitled to receive a Carer's Support and Needs Assessment (CSNA). For this reason, the PCC decided to do a piece of work on people’s views and experience of the assessment. The report was shared with the Health and Social Care family in Februa...
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Fibromyalgia: a hidden condition

This project aims to explain the impact that fibromyalgia has on people’s health, family life, work and hopes. In particular, their frustration with the time taken to get a diagnosis, the lack of understanding of the condition on the part of many healthcare professionals and society, and the lack of effective medication and support for self-management. The key aim of the involvement is to identify how services could be improved within existing constraints and how people can be true partners i...
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