Carer’s support and needs assessment (CSNA).

Through previous engagements with carers of people with a learning disability and or mental health illness, the Patient and Client Council (PCC) was made aware that carers had a need for further support following poor outcomes from assessments. Carers are entitled to receive a Carer's Support and Needs Assessment (CSNA). For this reason, the PCC decided to do a piece of work on people’s views and experience of the assessment. The report was shared with the Health and Social Care family in Februa...
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Fibromyalgia: a hidden condition

This project aims to explain the impact that fibromyalgia has on people’s health, family life, work and hopes. In particular, their frustration with the time taken to get a diagnosis, the lack of understanding of the condition on the part of many healthcare professionals and society, and the lack of effective medication and support for self-management. The key aim of the involvement is to identify how services could be improved within existing constraints and how people can be true partners i...
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HIV Service user forum (SUF)

The Service user forum (SUF) was formed to give people living with human immunodeficiency virus (HIV) a platform for partnership working and engagement with the services which deliver their care. It is a dynamic group, empowering service users to use their own experience and knowledge to help improve the physical, mental and emotional well-being of people living with and affected by HIV in Northern Ireland. At what level did the PPI take place? One to one; Service development/delivery. ...
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Future planning for older people caring for adult dependents with a learning disability

In 2012 the Patient and Client Council (PCC) was approached by a small number of elderly carers who were caring for adults with a learning disability. They were concerned for the future of their loved ones when they could no longer care for them. As a result of these conversations, the PCC worked to understand the needs of elderly carers with a view to championing change together. This project has involved extensive engagement between service users, carers and those with responsibility for pl...
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Connecting family carers with technology – a partnership project including carers.

This partnership project engaged with carers to develop a project that would connect carers with technology and provide access to the wealth of information available. At what level did the PPI take place? Co-design; Engaging. PPI helped the project to: Improve efficiency of a service. Increase ownership. Background Rsearch has shown that family carers need timely and relevant information in an accessible format. Developments in technology mean that there is more informati...
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Carer Support ECHO

Project ECHO (Extension for Community Healthcare Outcomes) is a tele mentoring model. This project enabled carers of people with palliative and end of life care, to have the opportunity to discuss situations which they have found challenging and determine the best actions. At what level did the PPI take place? One-to-one; Service development/delivery including education and mentoring; Commissioning/policy. PPI helped the project to: Improve efficiency of a service; Improve quali...
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Working better together: Improving the podiatric care of homeless people in Belfast

Service users from the homeless outreach service in two hostels, Rosemount House and Stella Maris, participated in the Belfast Health and Social Care Trust project. Focus groups of both residents and staff were set up and they provided a variety of experiences and information on how to develop podiatry services for people on the homeless spectrum. The impact of the project included: 1) a more efficient and effective delivery of outreach services; 2) a health promotion programme supporting self...
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