Making Improvement GREAT – Video Resources

Why was this video developed? The PPI Community of Practice developed two involvement Checklists, to aid healthcare staff, service users and family carers to work more effectively in positive partnerships. These were designed around the acronym GREAT and were launched in October 2018. They have been successfully shared and used widely across Northern Ireland. The GREAT Video The GREAT work has been developed further into this online learning resource. The scen...

Daisy Hill Hospital Pathfinder Project

The Daisy Hill Hospital (DHH) Pathfinder Project was initiated in June 2017 in response to increasing concerns about the future sustainability of DHH Emergency Department due to ongoing difficulties in recruiting senior medical staff, particularly in the out of hours period. The project brought together the collective skills, knowledge and expertise of clinical and non-clinical staff, managers, staffside representatives, representatives from the wider HSC system and local community members. The...

The Rowan, Sexual Assault Referral Centre for Northern Ireland

Service users who have been affected by sexual violence/abuse participated in the steering group consulting on the development of The Rowan, a sexual assault referral centre for Northern Ireland. Consultation groups of service users were set up to inform the design team, and ensure that the ethos of Personal and Public Involvement was kept to the heart of the centre’s development The impact of the project included: A consultation group of service users to inform the Communication Strate...

Being me again – life after brain injury

This project looked at designing a new innovation to the Community Brain Injury Team where individuals who were further on the recovery journey would co-produce and co-deliver a course on this topic – “Being me again – life after Brain Injury ”. Service users were involved in the development, implementation and the evaluation of this project. Focus groups were held to explore common issues and themes following brain injury. A course programme was designed incorporating these and then deliver...

Neurology unit and carer forum

In 2012, the Belfast Health and Social Care Trust Neurology Unit moved from Forster Green Hospital to a new building in Musgrave Park Hospital. It was necessary to bring together staff with patients and carers to determine the functions and operational arrangements of the unit. Initially, a survey was carried out to identify priorities for the unit and patients, along with their carers and family members, were fully involved in providing feedback. At what level did the PPI take place? Service ...

Stage IV endometriosis

There is no dedicated endometriosis centre in Northern Ireland or even a fast track referral pathway. Since 2013, the Patient and Client Council has been supporting women with severe (Stage IV) endometriosis to engage with decision makers with a view to improving diagnosis, safety and quality of life for patients. At what level did the PPI take place? Co-design; Co-production; Informing. PPI helped the project to: Improve safety; Inform commissioning; Increase ownership...

Health care Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Following representations to the Patient and Client Council (PCC) by patients and carers, the PCC agreed to facilitate a small working group of patients, carers and professionals to further understand the experience of people who are living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Northern Ireland. The aim of the project was to provide a mechanism for ME patients to be involved in decisions about future health care support for them. The outcome has been a greater aw...

Developing a young people’s forum

The Northern Ireland Guardian Ad Litem Agency (NIGALA) has been involved in an ongoing project to place children at the heart of decision making. NIGALA operates to promote engagement and participation in the court process by children and young people and to ensure their interests are safeguarded during the process. Over the last year, we have consulted with children and young people regarding our office signage and décor in the development of resources for practitioners to engage with child...

Volunteer peer advocacy service

A group of service users, carers and professionals identified the need for a Peer Advocacy Service (PAS) in 2011, resulting in the appointment of a peer coordinator and the establishment of a Peer Advocacy Steering Group consisting of service users, carers and professionals. This group agreed that courses should be co-designed to provide prospective peer advocates with the knowledge, skills and values required of the peer advocates. At what level did the PPI take place? Co-produc...

Involving children in co-designing resources.

The project set out to develop practice resources for the Northern Ireland Guardians ad Litem Agency (NIGALA) to more efficiently engage with children and young people involved in Court proceedings in order to ascertain their wishes and feelings in relation to their situation, ensure their wishes and feelings are heard in court, provide information and feedback to children and young people about their court proceedings, and promote their active participation in the court process. At what level ...

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