Fibromyalgia: a hidden condition

This project aims to explain the impact that fibromyalgia has on people’s health, family life, work and hopes. In particular, their frustration with the time taken to get a diagnosis, the lack of understanding of the condition on the part of many healthcare professionals and society, and the lack of effective medication and support for self-management. The key aim of the involvement is to identify how services could be improved within existing constraints and how people can be true partners i...

Stage IV endometriosis

There is no dedicated endometriosis centre in Northern Ireland or even a fast track referral pathway. Since 2013, the Patient and Client Council has been supporting women with severe (Stage IV) endometriosis to engage with decision makers with a view to improving diagnosis, safety and quality of life for patients. At what level did the PPI take place? Co-design; Co-production; Informing. PPI helped the project to: Improve safety; Inform commissioning; Increase ownership...