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Carer Support ECHO

Project ECHO (Extension for Community Healthcare Outcomes) is a tele mentoring model. This project enabled carers of people with palliative and end of life care, to have the opportunity to discuss situations which they have found challenging and determine the best actions.

At what level did the PPI take place?

One-to-one;

Service development/delivery including education and mentoring;

Commissioning/policy.

PPI helped the project to:

  • Improve efficiency of a service;
  • Improve quality;
  • Improve safety;
  • Inform commissioning;
  • Increase ownership.

Background

Project ECHO (Extension for Community Healthcare Outcomes) is a tele mentoring model, based on a hub-and-spoke knowledge-sharing networks, who use multi-point videoconferencing to conduct virtual clinics/meetings. This ECHO network aimed to provide support to carers of people with palliative and end of life care needs from a variety of conditions. The networks foster a spirit of learning from each other in a safe environment.

Through teaching sessions and case presentations, the carers have the opportunity to discuss situations which they have found challenging and determine the best actions. Over the course of the programme, participants discussed a range of subjects such as nutrition and diet, medication, self-care,  carers support and lifer after caring.

The Carers have been partners in the development and delivery of this programme.  Carers:
• Developed the curriculum with the hub members;
• Determined the day, time, length and frequency of the programme;
• Lead discussions during each session;
• Feedback will shape future Carer Support ECHO Networks.

Aim of involvement

To provide support to carers of people with palliative and end of life care needs from a variety of conditions.

Method(s) of Involvement

Focus groups

Challenges

Recruitment of carers.

Outcomes due to involvement

Focus group sessions with carers identified:

  • Positive shared learning experience;
  • Positive support network among carers;
  • Able to cascade learning to others;
  • Ability to be able to refer to other contacts/information;
  • Expand and add new specialised subjects relating to specific conditions eg Autism / Parkinson’s etc.

Feedback/quotes from service users/carers involved

  • Validation from ECHO carers that what you are doing is right;
  • Making caring a lot easier;
  • Didn’t get given help, had to go and look for it before this.

Timeframe

January 2017 – June 2017

Further Information

For further information, contact:
Corrina Grimes (AHP Consultant)
Public Health Agency

Email: corrina.grimes@hscni.net