Stage IV endometriosis

There is no dedicated endometriosis centre in Northern Ireland or even a fast track referral pathway. Since 2013, the Patient and Client Council has been supporting women with severe (Stage IV) endometriosis to engage with decision makers with a view to improving diagnosis, safety and quality of life for patients. At what level did the PPI take place? Co-design; Co-production; Informing. PPI helped the project to: Improve safety; Inform commissioning; Increase ownership...
More

Developing a young people’s forum

The Northern Ireland Guardian Ad Litem Agency (NIGALA) has been involved in an ongoing project to place children at the heart of decision making. NIGALA operates to promote engagement and participation in the court process by children and young people and to ensure their interests are safeguarded during the process. Over the last year, we have consulted with children and young people regarding our office signage and décor in the development of resources for practitioners to engage with child...
More

Steering groups

Steering groups are made up of experts who oversee a project to ensure that protocol is followed and provide advice and troubleshoot where necessary. The members of the steering group can be professionals, service users and carers or other interested members of the public. Their role is to: Provide input based on their direct experience of the topic under investigation; Give strategic direction; Support the project manager. The steering group usually meets at key stages during the...
More

Volunteer peer advocacy service

A group of service users, carers and professionals identified the need for a Peer Advocacy Service (PAS) in 2011, resulting in the appointment of a peer coordinator and the establishment of a Peer Advocacy Steering Group consisting of service users, carers and professionals. This group agreed that courses should be co-designed to provide prospective peer advocates with the knowledge, skills and values required of the peer advocates.   At what level did the PPI take place? Co-produc...
More

Formalised involvement on strategic groups

Individuals are recruited onto strategic groups to provide a service user and/or carer perspective on a particular subject. Their input is not representative of a wider community but acts as an ‘involvement conscience’ to the group. They can advise on how best to gain wider involvement from other stakeholders on key issues as required. Early involvement of individuals is recommended alongside: A comprehensive induction; Determine the need for training, and; Ongoing support. For ...
More

Participatory strategic planning

The Participatory Strategic Planning process is a consensus-building approach. It helps a community come together in explaining how they would like their community or organisation to develop over the next few years, working in partnership with decision makers from the start. It consists of four stages: The community determines their vision for the future of the organisation or community; The community describe the obstacles that are preventing them from reaching their vision with decisio...
More

Participatory appraisal

The term Participatory Appraisal describes a range of approaches to enable local communities to identify their own priorities and make their own decisions about the future. The organising agency facilitates, listens and learns rather than control the process. There is an onus on the agency to support the process eg provide resources and through time, to train ‘champions’ from the local community on the participatory appraisal approach. This enables local people to engage with existing communi...
More

Future search

Future search is a planning meeting and a way for a community or organisation to create a shared vision for its future. The meeting is task focussed and works best when you want commitment from all stakeholders. It enrols a large group of stakeholders who are chosen because they have power, resources, information on the topic, expertise and are affected by the outcomes. It requires a ‘whole system’ in the room approach. Ideally there are between 60-80 people in one room or 100s in parallel rooms...
More

Consensus building/dialogue

This approach is useful when there is a contentious issue or when you wish to build and improve relationships between diverse groups to reach a proactive consensus. It may incorporate a range of approaches which will have dialogue at its core. This is mainly conducted through workshops and meetings to help participants identify common ground and mutually beneficial solutions to a problem. Dialogue involves all stakeholders which must include people who have a concern about the outcome, includ...
More