1 in 4 – Putting miscarriage on the agenda.

The aim of the 1 in 4 – Putting Miscarriage on the Agenda project was to do just that, to highlight the gaps in service and improve future provision for women and their partners who experience a miscarriage. Women who had experience in this area were pertinent in shaping the agenda and influencing change through their powerful and emotional experiences. Initially, effort was put into: Addressing the lack of information given to women at this traumatic time; The collation of support gr...
More

Developing a young people’s forum

The Northern Ireland Guardian Ad Litem Agency (NIGALA) has been involved in an ongoing project to place children at the heart of decision making. NIGALA operates to promote engagement and participation in the court process by children and young people and to ensure their interests are safeguarded during the process. Over the last year, we have consulted with children and young people regarding our office signage and décor in the development of resources for practitioners to engage with child...
More

NI Cancer Research Consumer Forum (NICRCF)

The Northern Ireland Cancer Trials Network (NICTN) established the NI Cancer Research Consumer Forum (NICRCF) in 2011. The NICRCF brings together a group of patients and carers affected by cancer to work in partnership with cancer researchers across Northern Ireland and beyond. Involvement utilises various methods such as; face-to-face discussion with researchers, review of patient clinical trial documents, membership of research project committees. NICTN coordinates and supports research delive...
More

Public Involvement Enhancing Research (PIER)

This project has involved the recruitment of a pool of Personal and Public Involvement (PPI) representatives to inform the work of Health and Social Care (HSC) Research and Development (R&D) Division, Public Health Agency, including participation on funding panels. This group is called PIER (Public Involvement Enhancing Research). The aim of the project is to ensure PPI is implemented in HSC R&D Division and by its stakeholders, increasing awareness of the benefits of PPI to researchers ...
More

ds