Active Birth Centre (ABC)

Robust clinical evidence supports the establishment of Alongside Midwife-Led Units, co-located to Obstetric-Led Units with a shared philosophy and understanding of normal birth. This project aims to embed and sustain the Active Birth Centre (ABC) Alongside Midwife-Led Unit as an alternative and viable birthplace option for all women with low risk pregnancies birthing within BHSCT Maternity Service, therefore normalising birth and decreasing the likelihood of intervention. Engagement with s...
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The A-Z of Care

Young people in care are creating on a glossary of terms to replace the jargon and abbreviations already existing within Social Care as they feel they are inaccessible. This project is supported by Voice of Young People in Care (VOYPIC). At what level did the PPI take place? Service development/delivery PPI helped the project to Increase ownership; Improve quality. Background VOYPIC supported young people to attend the public consultation on ‘Strategy for Looked after Child...
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Western Trust radiotherapy project

During the development of a new radiotherapy treatment facility at Altnagelvin Hospital, the Western Health and Social Care Trust (WHSCT) engaged with service users to ensure their views shaped the design of the service and the ward itself. This input from service users influenced the design of the radiotherapy ward and the ambulance service for patients at the facility. At what level did the PPI take place? Service development/delivery. PPI helped the project to Improve qual...
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Come walk in my shoes

Approximately 30 young people were involved in the planning and delivery of the events and over 100 people from the health and education professions who work with young people attended. Attendees heard from the young people about the challenges they face on a daily basis. The aim of the events was that those who attended would be able to adapt the services they deliver/commission to remove any challenges for young Lesbian, Gay, Bisexual and Transgender (LGBT) people. Interactive events were held...
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Fibromyalgia: a hidden condition

This project aims to explain the impact that fibromyalgia has on people’s health, family life, work and hopes. In particular, their frustration with the time taken to get a diagnosis, the lack of understanding of the condition on the part of many healthcare professionals and society, and the lack of effective medication and support for self-management. The key aim of the involvement is to identify how services could be improved within existing constraints and how people can be true partners i...
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Stage IV endometriosis

There is no dedicated endometriosis centre in Northern Ireland or even a fast track referral pathway. Since 2013, the Patient and Client Council has been supporting women with severe (Stage IV) endometriosis to engage with decision makers with a view to improving diagnosis, safety and quality of life for patients. At what level did the PPI take place? Co-design; Co-production; Informing. PPI helped the project to: Improve safety; Inform commissioning; Increase ownership...
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1 in 4 – Putting miscarriage on the agenda.

The aim of the 1 in 4 – Putting Miscarriage on the Agenda project was to do just that, to highlight the gaps in service and improve future provision for women and their partners who experience a miscarriage. Women who had experience in this area were pertinent in shaping the agenda and influencing change through their powerful and emotional experiences. Initially, effort was put into: Addressing the lack of information given to women at this traumatic time; The collation of support gr...
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Future planning for older people caring for adult dependents with a learning disability

In 2012 the Patient and Client Council (PCC) was approached by a small number of elderly carers who were caring for adults with a learning disability. They were concerned for the future of their loved ones when they could no longer care for them. As a result of these conversations, the PCC worked to understand the needs of elderly carers with a view to championing change together. This project has involved extensive engagement between service users, carers and those with responsibility for pl...
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Involving children in co-designing resources.

The project set out to develop practice resources for the Northern Ireland Guardians ad Litem Agency (NIGALA) to more efficiently engage with children and young people involved in Court proceedings in order to ascertain their wishes and feelings in relation to their situation, ensure their wishes and feelings are heard in court, provide information and feedback to children and young people about their court proceedings, and promote their active participation in the court process. At what level ...
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